Volume 13 Supplement 3

Fifth International Symposium on Intensive Care and Emergency Medicine for Latin America

Open Access

Guillan–Barré syndrome affects the quality of life after discharge from the ICU

  • SE Mataloun1,
  • B Lazzaretto1,
  • K Batista1,
  • C Campos1,
  • S Orra1,
  • M Annes1 and
  • M Moock1
Critical Care200913(Suppl 3):P57

https://doi.org/10.1186/cc7859

Published: 23 June 2009

Introduction

There are some patients with Guillan–Barré syndrome (GBS) that require intensive care, either owing to the accentuated progression of their clinical history or because of evolution towards acute respiratory failure. Most of the time, there are deep sequelae that cause impacts on the quality of life (QOL) of these patients. There is no specific score for the assessment of physical and/or motor inability in GBS patients.

Objective

To assess the QOL of GBS patients admitted to the ICU, after hospital discharge, utilizing the SF-36 and the Barthel Index.

Methods

The GBS incidence in the population of patients admitted to the ICU of Hospital Estadual do Grajaú in the period from April 2005 to October 2008 was reviewed and a study file was elaborated with demographic data. For the patients' follow-up, telephone contact was established and, after consent was granted, those who agreed responded to SF-36 and Barthel Index questionnaires. Telephone contact was not possible only in one patient. Additionally, the professional activity of the patient was evaluated before and after the disorder.

Results

In this sample, seven patients presented a GBS diagnosis, reflecting 0.5% of the total group. Out of the seven patients, six presented previous infections. The mean average ICU length of stay was 14.4 days. Three patients required mechanical ventilation (42.8%). Tracheotomy was performed in two patients. All of them were supplied with immunoglobulins. The evaluation report results as per the Barthel Index and the SF-36 are presented in Tables 1 and 2, respectively.
Table 1

Results of the Barthel Index questionnaires relating to the daily activities of GBS patients

Activity

01

02

03

04

05

06

Feeding

10

10

10

10

10

05

Cleanliness

05

05

05

05

05

00

Evacuation

10

10

10

10

10

10

Diuresis

10

10

05

10

10

10

Dressing

10

05

10

10

10

00

Transference chair/bed

15

15

15

10

15

00

Toilet

10

10

10

10

10

00

Mobility

15

15

15

15

15

00

Stairs

10

10

10

10

10

00

Bath

05

05

05

05

15

00

Total

100

95

95

95

100

25

0 is the worst value and 100 the best result.

Table 2

Results of the SF-36 questionnaire relating to eight major masteries

Patient

01

02

03

04

05

06

Functional capability

100

55

65

40

0

0

Physical limitation

100

0

0

0

0

0

General health status

100

31

42

10

10

42

Vitality

60

27

85

30

77

72

Social aspects

50

50

100

37.5

12.5

25

Emotional limitation

100

0

0

0

0

0

Mental state

52

96

88

28

48

48

Pain

100

31

42

10

10

42

100 is the best result and 0 the worst value.

Conclusion

GBS patients undergo an impact on QOL, although there was a considerable physical recovery after a period of 1 to 2 years. These results may help doctors to be aware that a careful neurological examination may be complemented with the opinion of the patients regarding their QOL.

Authors’ Affiliations

(1)
Department of Neurology, Universidade de Santo Amaro,Hospital Geral do Grajaú

Copyright

© BioMed Central Ltd 2009

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