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Table 6 Functional outcome at different time points

From: Long-term outcome in new onset refractory status epilepticus: a retrospective study

Pat. ID

Cause of NORSE

ICU-LOS (days)

mRS at hospital admission

mRS at hospital discharge

Reason of death

mRS at 12 months

Last available mRS

Days after ICU admission of the last available mRS

1

Cryptogenic

49

2

6

Abdominal compartment syndrome with MOF

x

x

x

2

CASPR-2-antibody encephalitis

15

5

6

WLST

x

x

x

3

Recurrent deficit perfusion due to ICA stenosis

21

5

4

 

2

2

327

4

Cryptogenic

25

2

4

 

1

1

1872

5

Cryptogenic

32

3

5

 

1

1

740

6

Cryptogenic

41

5

6

WLST

x

x

x

7

Cryptogenic

26

3

3

 

2

2

4166

8

Cryptogenic

10

5

5

 

5

6

743

9

Cryptogenic

28

2

4

 

2

2

456

10

Cryptogenic

34

5

5

 

n.a

3

130

11

CJD

19

5

6

WLST

x

x

x

12

Herpes encephalitis

7

2

6

WLST

x

x

x

13

Tick-borne encephalitis

2

2

2

 

1

0

1693

14

Herpes encephalitis

20

2

4

 

3

3

658

15

Cryptogenic

9

5

6

WLST

x

x

x

16

Cryptogenic

20

1

6

WLST

x

x

x

17

Herpes encephalitis

20

3

3

 

1

1

1272

18

Cryptogenic

86

3

5

 

4

3

905

19

Cryptogenic

27

0

6

WLST

x

x

x

20

Cryptogenic

3

3

5

 

x

6

17

21

Cryptogenic

18

5

4

 

2

2

716

22

Anti-GABAA receptor encephalitis

21

5

3

 

2

2

791

23

Cryptogenic

88

5

4

 

4

6

531

24

Cryptogenic

191

5

6

WLST

x

x

x

25

Cryptogenic

23

4

4

 

2

2

550

  1. Functional outcome. NORSE New onset refractory status epilepticus; ICU-LOS Length of stay at the intensive care unit; mRS modified Rankin scale; ICA Internal carotid artery; CDJ Creutzfeldt-Jakob disease; n.a Not available. MOF Multiorgan failure; WLST Withdrawal of life-sustaining treatment; ICU-LOS Length of stay at the intensive care unit