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Table 5 Outcome and end of life process

From: Long-term outcome in new onset refractory status epilepticus: a retrospective study

In hospital death, n (%)

9 (36)

Death at last available follow-up, n (%)

14 (56)

Limitation of treatment in deceased patients (data available for 12/14 pts), n (%)

10 (77)

Presence of written advance directives in deceased patients, (data available for 12/14 pts), n (%)

3 (25)

Trigger of EOL decision, data for patients who died in hospital n = 9

 

  Medical staff, n (%)

8 (89)

  Relatives, n (%)

1

Time of EOL decision from ICU admission, days (n = 10)

29 [12–51]

Time from EOL decision to death, days, (n = 10)

6 [1–8.5]

mRS at hospital discharge (n = 25, median and range)

5 [4-6]

mRS at hospital discharge for survivors (n = 16)

4 [3.75–5]

mRS at 12 months for survivors (data available for 14/16 patients)

2 [1.25–2.75]

mRS at last available follow-up for survivors (n = 16; median and range)

2 [1.75–3]

Favorable mRS (0–2) at last available follow-up for hospital survivors (n = 16) n (%)

10 (62.5)

Timing of last available follow-up for hospital survivors (n = 16) from admission date (days, median and IQR)

728 [521–997]

  1. EOL End of life; mRS modified Rankin scale; ICU intensive care unit. Data are present as counts/percentages, or as median including the interquartile range (IQR), as appropriate