From: Long-term outcome in new onset refractory status epilepticus: a retrospective study
In hospital death, n (%) | 9 (36) |
Death at last available follow-up, n (%) | 14 (56) |
Limitation of treatment in deceased patients (data available for 12/14 pts), n (%) | 10 (77) |
Presence of written advance directives in deceased patients, (data available for 12/14 pts), n (%) | 3 (25) |
Trigger of EOL decision, data for patients who died in hospital n = 9 | |
Medical staff, n (%) | 8 (89) |
Relatives, n (%) | 1 |
Time of EOL decision from ICU admission, days (n = 10) | 29 [12–51] |
Time from EOL decision to death, days, (n = 10) | 6 [1–8.5] |
mRS at hospital discharge (n = 25, median and range) | 5 [4-6] |
mRS at hospital discharge for survivors (n = 16) | 4 [3.75–5] |
mRS at 12 months for survivors (data available for 14/16 patients) | 2 [1.25–2.75] |
mRS at last available follow-up for survivors (n = 16; median and range) | 2 [1.75–3] |
Favorable mRS (0–2) at last available follow-up for hospital survivors (n = 16) n (%) | 10 (62.5) |
Timing of last available follow-up for hospital survivors (n = 16) from admission date (days, median and IQR) | 728 [521–997] |