- Poster presentation
- Open access
- Published:
Parent's perception on end-of-life care in Brazil
Critical Care volume 17, Article number: P532 (2013)
Introduction
The aim of the study is evaluate the perceptions of parents of children who died in two Brazilian pediatric ICUs.
Methods
An exploratory-descriptive study with a qualitative approach in the PICU of Hospital São Lucas and Hospital de Clinicas de Porto Alegre involving 15 parents of children who died. Data collection was performed through three steps: (a) the researchers contacted the parents through a telephone call to invite them to attend the hospitals; (b) at the hospital, the doctors who assisted the children clarified doubts about the therapy offered; and (c) an interview was carried out by two researchers not involved in the care. Data analysis was performed using the technique of thematic content analysis.
Results and conclusion
The research shows that the difficulty of communication is a factor that impacts negatively on the grieving process. Moreover, it stresses the importance for parents to rediscuss the moment of their child's death with health professionals.
References
Meyer E, Ritholz M, Burns J, Truog R: Improving the quality of end-of-life care in the pediatric intensive care unit: parents priorities and recommendations. Pediatrics 2006, 3: 469-457.
Meyer E: On speaking less and listening more during end-of-life conferences. Crit Care 2004, 32: 1609-1611. 10.1097/01.CCM.0000130818.22599.2D
Lago P, Othero J, Garcia PC: Evaluating end of life in ten Brazilian pediatric and adults intensive care units. J Med Ethics 2010, 36: 344-348. 10.1136/jme.2009.035113
Meert K, et al.: Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit. Pediatr Crit Care 2008, 9: 2-7. 10.1097/01.PCC.0000298644.13882.88
Author information
Authors and Affiliations
Rights and permissions
This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
About this article
Cite this article
Lago, P., Piva, J., Halal, G. et al. Parent's perception on end-of-life care in Brazil. Crit Care 17 (Suppl 2), P532 (2013). https://doi.org/10.1186/cc12470
Published:
DOI: https://doi.org/10.1186/cc12470