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Table 2 Present difficulties and future opportunities for relatives involved in SDM in open ICUs

From: New perspectives on substituted relational autonomy for shared decision-making in critical care

Difficulties Opportunities
• Understanding medical information
Appreciating consequences
Relevance accorded to technical and clinical information
Emotional context
• Involvement in regular meetings
Collect and trace relevant data on the basis of clinical changes
Prevent and detect misunderstandings
Benefit from regular and effective communication
• Assuming moral responsibility for the wishes of the patient
Defining relatives’ personal values and priorities
Defining power of attorney (conflicts within relatives)
• Provide patient’s personal information
Perceived health-related quality of life
Character and will to live (demonstrated resilience)
History of illness
• Low accuracy in predicting patient’s preferences
• Disagreements about goals of care (especially in end-of-life situations)
• Share responsibilities
Possibility to engage with the interdisciplinary team
Possibility to check other sources of information (web, social media)
• Exposure to emotional burden and psychological disorders • Maintain and share intimacy with patient