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Table 1 ARDS survivor interview guide

From: Education and support needs during recovery in acute respiratory distress syndrome survivors

1. Please describe your experience with ARDS beginning in the ICU, moving through acute care and rehab, and then back to the community.
2. Do you currently have any physical, emotional, cognitive difficulties?
3. Please describe your ICU stay to me. Elaborate on any met or unmet needs that you may have experienced. What could have made your stay easier or more comfortable? Were there any features during your stay that troubled you?
4. Please describe your ward stay for me. Elaborate on any met or unmet needs that you may have experienced. How were these needs different from your ICU stay? Were you concerned about leaving the ICU?
5. Please describe your experiences as you prepared for hospital discharge. Elaborate on any met or unmet needs that you may have experienced. What was your destination following discharge - rehabilitation hospital or home?
6. Please tell me about your experiences during in-patient rehabilitation. Elaborate on any met or unmet needs that you may have experienced.
7. Please tell me about your experiences during your first few months at home. Elaborate on any met or unmet needs that you may have experienced.
8. Please tell me about your experiences living back in the community. How were they different from your first few months? Elaborate on any met or unmet needs that you may have experienced.
9. What are your thoughts regarding your future? Do you foresee any further support needs? Please elaborate on any needs you think you may require.
10. As you reflect back on your entire illness, what specific times in your recovery would you have benefited most from physical rehabilitation, psychological counseling, information, education, support, and/or training?
  1. ARDS = acute respiratory distress syndrome;